If I was reminded of one thing on World AIDS Day this year, it is the importance of semantics and the power our words have. As a general observation, there seemed to be a discord here in Bahia about what to call the event that is celebrated worldwide December 1st. Dia de LUCHA de SIDA – yes we are struggling and fighting to stop the spread of AIDS, but not fighting AIDS directly per say on this day, especially not fighting people living with HIV or AIDS; Dia CONTRA de SIDA – but we are not against AIDS either, we all want the cure to be found, we want the spread to stop, we want people to live long happy, productive lives, we are very pro the people living with HIV/AIDS, in fact we are working hard to make sure their health needs are met so they can live to their optima while their rights are also observed; Dia de la RESPUESTA de SIDA – a better choice of words, a day to respond to the AIDS epedemic, but how are we responding, are we judging, are we marching, are we helping, recognizing, remembering ,respecting? With all of these loaded terms being thrown around and so many people making assumptions and statements about what we should be doing, what we are doing on World AIDS day, I found it easy to lose track of the real intention of the day.
Peace Corps global campaign for World AIDS day in 2009 was aprenda, sirva, respete (learn, serve, respect). In all of the flying words of World AIDS day in Bahia, LUCHA, CONTRA, RESPUESTA, I had to focus myself back on the purpose of the 1st of every December. World AIDS day is exactly on point with the Peace Corps theme this year. LEARN. Learn about the epidemic, not just about the biology of HIV and AIDS, but about the world impact, the reality of the people living in your neighborhood, community, town, state, country, region, the world. Becoming informed, and for one day letting it all sink in and really reflecting of what the AIDS epidemic means to so many people, how it affects personal lives, families, the economic impact on communities, what the epidemic means to you. SERVE. Do something, participate, educate yourself, a neighbor, a parent, a friend. Make a commitment to do what you can, however big or small it is, contribute. RESPECT. Respect the millions of people with names, families, histories just like yours that are living with HIV/AIDS. Respect and remember those that have passed away from AIDS. Respect that no one deserves to die prematurely, that the majority of people who have passed and those living with HIV and AIDS contracted the disease unknowingly; that majority of people who have died are women and children, women who contracted HIV in their own beds from a husband they have always been faithful too, and children born HIV positive because their parents didn't know or have access to anti-retro viral treatment. Respect those, who believed they were living typical lives, having relations as people have had for years, who didn't have all of the information, and are now HIV positive or living with AIDS. World AIDS Day is about solidarity. Solidarity as a worldwide community, to take one day a year to remember those who have died, recognize and celebrate those who are living, and to make a commitment to the rest of world do everything humanly possible to work towards a future where HIV/AIDS is no longer the world epidemic.
Soapbox speech aside, what did my first World AIDS Day look like here in Bahia? Well because I work with a foundation that has its rhetoric and analysis in place, we got to work. In a mid-October meeting with various health professionals, community leaders, persons living with HIV and AIDS, and representatives from various groups, Father Pedro broke down the reality and gravity of the HIV epidemic here in Ecuador to the Comite para la Respuesta de VIH, SIDA y ITSs del Canton Sucre (the Sucre County Commission for the Response to HIV, AIDS and STIs). Ecuador is at a 3% confirmed infection rate (that doesn't account for those who have never been tested, surely there are many unconfirmed cases); as of October there were no more free tests to be administered, and the HIV treatment that is provided to all HIV+ people was in short supply. The government had still yet to make a statement about its plan to address the rising HIV rate in Ecuador, and how it would be meeting testing and treatment needs in the coming years. I sat in a silent room as Pedro put it bluntly to the group, Ecuador is a disgrace in its response to HIV and AIDS. Every African nation has a better plan and response to the situation of HIV and AIDS in their country than Ecuador. Ecuadorians need to stop believing that it can't happen here, not in my community, not to me – because the reality is that it is here, it is in nearly every community, and people need to educate themselves and take precautions to protect themselves. Ecuador's fate hangs in the balance in terms of HIV, and we have models to compare it to, South Africa and Brazil. When both of these countries were at the 3% danger zone, Brazil's government created a strong response moving the education, prevention, and treatment campaigns straight into the poorest, most effected communities, and today Brazil is a model country in terms of the response and management of HIV/AIDS. South Africa on the other had lacked a strong, concerted government response in the poorest, marginal, most effected communities and today South Africa has one of the highest rates of people living with HIV/AIDS in the world without the help and services that they should have to live long, productive lives with HIV.
So if there are no tests, lacking anti-retro viral drugs available, misunderstanding and misconceptions about HIV, what is a community group to do? The Fundacion Corazon Solidario started its World AIDS Day campaign a day early, November 30th, at 8am a group of 40 or so gathered to embark on a door-to-door campaign to educate our neighbors and community members about the reality of HIV/AIDS in Ecuador and Bahia. We were selective in our campaign. The demographic for the highest infection rate here in Ecuador effects people living in marginal neighborhoods, who live in humble conditions, and who have “trabajo eventual,” which is to say, they work when there is work available; families who live on
just a few dollars a day, with little financial stability. The sub-group most effected by HIV/AIDS here in Ecuador: amas de casa, housewives, women who contract HIV in their own beds from their husbands. So between 9am and noon, as we walked door to door, and who do you think we found in most every home? Dutiful housewives and mothers, washing clothes by hand, preparing lunch, taking care of children, attending to small neighborhood stores, and doing the necessary odds and ends around the house.
I was walking the dusty streets of Acuarela, one of the poorest barrios in Leonidas Plaza, with a good friend Raquel. In a land of few tests and fewer drugs, we talked to women about the reality of HIV in Bahia and in their own barrio. We talked about confidence, trust and communication between partners; we talked about fidelity. We also stressed us being two women walking the streets talking about HIV without fear and without shame. If nothing else, we were trying to get the topic of HIV out of the dark, because Ecuador won't see a change until people start taking about HIV and acting in a manner to prevent it. We handed out flyers, brochures, and pinned everyone with a red ribbon asking them to wear it in solidarity with those living with HIV and AIDS for the following day and as a commitment to take the necessary measures to ensure that they would live long, healthy, productive lives.
I arrived to the Worlds AIDS Day event at 7am the following day feeling like we had already made some kind of positive impact toward the true purpose of the 1st of December. Within two hours, various organizations, government agencies, schools, and medical groups had set up a plethora of booths covering a variety of topics. From TB to supporting children born HIV+ it was all there. But I was particularly proud of the foundations contribution to the “open house” type of event, not only did we have a huge, puffy, red-felt lasso, we had a great topic: acknowledging the societal discrimination against people living with HIV and AIDS and developing a model of inclusion and respect for people living with HIV and AIDS. So maybe I have embellished our topic a bit, but that is really what we covered in the 1001 mini-charlas that were given under our tent that day...talking about people living HIV and AIDS, their rights to participate in Ecuadorian society, and need for people to change their analysis of what it means to be HIV+, to stop being afraid, to stop judging and stop excluding these individuals.
As the event concluded a little after noon, there had been a lot of HIV/AIDS material distributed, some singing and dancing by drag queens, facts recited by elementary age kids, 1000s of red ribbons pinned, a parade, and I think something to be learned by all. In true form of the foundation, the event didn't end there. All were invited to meet up later in the evening in the community of Charapoto for a special misa (it's a catholic foundation, you should predict it by now!) to remember those who have passed away from AIDS and those who are living with HIV and AIDS. In a true Father Pedro form, it was less ritual and more reflection finding the space for a few community members to speak about those fallacidos (passed away), their spirit, their work, their commitment, and their struggle, and giving a place of support and comfort to those living with HIV to share and receive compassion from a group of people who care. All of this really did encompass the Peace Corps theme: learn, serve, respect, as well; taking the opportunity to listen and understand compassionately the reality of living with HIV, being present for the moment, and being their in solidarity, that is what the true nature of World AIDS Day is about, not about fighting against or responding, but taking a day to inform ourself, commit ourselves, and understand.